While this is a fashion blog, sometimes I feel compelled to do what I can to assist good causes. Today is no exception.
The folks over at Sixx Pack have put together an all day event today in order to raise funds and awareness for children and the few adults who survive, Epidermolysis Bullosa. This rare skin disease is an inherited connective tissue disease causing blisters to the skin and mucosal membranes. Its severity ranges from mild to LETHAL. Most children born with this do not live past an average of 2 years. It has been described akin to having 3rd degree burns your whole life and is quite painful.
The University of Minnesota has done a bone marrow transplant on a 2 year old child and found it to be successful, but more research and funding is needed to help, please come down to Sixx Pack today and help the caring folks by bidding on an auctioned item, person, or service or simply donate what you can to the donation jar. All parties today are mixers so both male and female avatars are welcomed to join in.
Right now from 8-10am our very own Kilolo Jenkins is DJing!! but parties will go on all day - I hope you can help us, help them!!!
2 comments:
Thank you for posting this! I almost forgot to!!
Please folks...come out and support! This is too important not to!!
Oh my gosh, over 1000 US Dollars raised for EB Awareness by the sponsors and people of Sixx Pack - WAY TO GO GUYS!!!
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